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United States Prevalence of Amyotrophic Lateral Sclerosis 2010-2011


General Info
Original or alternative title 
Prevalence of Amyotrophic Lateral Sclerosis — United States, 2010–2011
Coverage type 
Time period covered 
10/2010 - 12/2011
Series or system 
United States National Amyotrophic Lateral Sclerosis (ALS) Registry
Morbidity and Mortality Weekly Report (MMWR)
Data type

The United States National ALS Registry, implemented in 2009, uses four existing national databases as a basis to determine ALS prevalence: Medicare, Medicaid, Veterans Health Administration, and Veterans Benefits Administration databases. A web portal launched in 2010 also collects risk factor data and allows self-registration. This report covers 12,187 people registered during the period from October 2010 to December 2011, finding a prevalence within the general United States population of 3.9/100,000. Incidence is not included in this report, as some registrations are missing the date of diagnosis.