United States - South Carolina Traumatic Brain Injury Follow-up Registry

The South Carolina Traumatic Brain Injury Follow-up Registry was a statewide prospective cohort study. It examined deficits and limitations reported by individuals with TBI, risk factors for secondary conditions, life satisfaction, mortality, and unmet needs and service barriers. Participants' medical records were reviewed and they participated in one initial interview 12 months post-discharge, and up to three annual follow-up interviews. The study took its sample from the South Carolina TBI Surveillance System, and interviewed 2,119 affected individuals aged 16 and older.

The results of this survey were reported in the Journal of Head Trauma Rehabilitation in an article titled "A Population-based Outcomes Study of Persons Hospitalized with Traumatic Brain Injury" (Pikelsimer, Selassie, Gu, and Langlois).