Pooled Resource Open-Access ALS Clinical Trials Database 1990-2010
General Info
Coverage type
Global
Time period covered
January, 1990 - December, 2010
Data type
Intervention study
Summary
The Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT) Database contains over 8500 de-identified Amyotrophic Lateral Sclerosis (ALS) patient records from 17 Phase II and III clinical trials. The database has over eight million data points and includes information on patient demographics, lab tests, family and medical history, symptoms, medication use, and outcome measures. The PRO-ACT Database was created by merging data from existing publicly and privately conducted ALS clinical trials.
Keywords
Blood glucose, Blood pressure, Blood tests, Cholesterol, Cholesterol tests, Disability, Drug consumption, Ethnicity, Glomerular filtration rate, Glucose tests, Height, Hemoglobin, Limited mobility, Medicines, Microalbuminuria screening, Mortality, Motor neuron disease, Occult blood, Pulse, Race, Respiratory function tests, Urine tests, Weight
Citation
Contributors
Funders
Suggested citation
Neurological Clinical Research Institute, Massachusetts General Hospital, Northeast ALS Consortium (NEALS), Prize4Life. Pooled Resource Open-Access ALS Clinical Trials Database 1990-2010. Haifa, Israel: Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT).